Baby Death Panel: Court Rules Baby Must Die, Even Though Parents Can Pay Out of Pocket…(GRRRRR…)
Over 83,000 people have contributed £1.3 million in an effort to save a 10-month-old boy who has been sentenced to “die with dignity” by his government.
By Rachel Blevins
TheFreeThoughtProject.com
July 1, 2017
When the parents of 10-month-old Charlie Gard raised more than £1.3 million in an attempt to save their critically ill son, they had no idea that the European Court of Human Rights would be the only thing standing in the way of pursuing further treatment.
Gard suffers from mitochondrial depletion syndrome, a rare genetic condition that has caused serious brain damage. After British doctors determined that he was beyond saving and should “die with dignity,” Gard’s parents appealed to both the United Kingdom’s Supreme Court and the ECHR in France, and received the same answer.
Chris Gard and Connie Yates set up a GoFundMe account for their son, in which they explained that because Charlie is the 16th person in the world to have ever been diagnosed with the condition, they have found an experimental treatment that is only available in the United States.
“Charlies condition is caused by a disruption in the mitochondria, the part of the cell that provides energy to his muscles, kidneys and brain. There is a new treatment available which is a nucleoside bypass therapy, which could potentially repair Charlie’s mtDNA and help it synthase again by giving him the naturally occurring compounds that his body isn’t able to produce. It’s oral medication so nothing invasive or harmful. We are running out of precious time with our baby, he can’t have this treatment in the UK so our only hope now is to get Charlie to America.”
Despite the fact that Charlie Gard’s parents succeeded in raising more than the £1.3 million they were seeking, in an attempt to pay out of pocket for their son to receive treatment in the U.S., the UK’s healthcare system left the ultimate decision up to the government.
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